It just seemed to be a normal day. I enjoyed sitting on my boat until I had to go to the 
bathroom. The paper collor was black. With my anticoagulation all kind of reasons to go see the doctor. And the hospital… You imagine probably the rest of the story.
It was not my only health issue lately. A couple of weeks ago I was rushed into the emergency room by ambulance and put in a CT scanner because the right side of my body had a short malfunction.
Fortunately no further damage but it gave me a life-changing vision. With all my ambassador like jobs for the antiphospholipid syndrome there is to less time for just normal living with this crunchy body.
So I quit all
I was running for candidate to become an Epag in the recon network but I had to postpone due to my bed health. Now I stopped everything except for the chair work I do at the Dutch lupus foundation (NVLE). And even there I’m not quite sure if I will be able to continue much longer.
But I think the patient’s have the right of good representation, and in this health condition I am not able doing that at the utmost way.
For the time being I keep blogging in Dutch and English and only postpone all my work. Later on this year I will evaluate the situation and make a more permanent decision.
