Categorie: English Blog

Wondering what to do with all the new time not doing any volunteer work, I found myself walking from one emergency room to another. Too much anticoagulation and...

It just seemed to be a normal day. I enjoyed sitting on my boat until I had to go to the bathroom. The paper collor was black. With my anticoagulation all kind ...

When I recently put a picture of myself on the internet (Facebook) I noticed – also in the comments thanks all- the impact of my recent hospitalization wa...

After a full week in bed with a strong internal bleeding, I dont think it’s going that great. My stools still aren’t normal of color and I feel mega...

Today is a special day, 3 years ago I was fighting for my life when doctors replaced my main artery. The last couple of days I was fighting again. An internal b...

On Wednesday, February 20, it was noticed that there was an excessive flatulence at times. Eventually this turned out to lead to an internal bleeding, which wit...

You’ve probably learnt by now, my English blog is not as accurate as the Dutch. You will have to realise that I want to write about living with lupus and ...

November 5 is a special day for me. It was the day my main artery broke down and although it took the medics six days to find the reason for my health problems ...

A few things came together last week. I met Graham Hughes, the rheumatologist who first described the antiphospholipid syndrome, and I was not only a speaker at...